Mrs Anne-Sophie Chalandon  works to further enhance Sanofi’s external engagement and policy shaping efforts with rare disease community. She brought a solid experience and demonstrated successes in patient advocacy and policy shaping in the rare disease space. Anne-Sophie is a major in genetic and molecular biology, holds a PhD in Business and Management from HEC Paris Business School and a Master’s in health policy at Paris Sciences Po. 

In her current role, she is Head of Global Rare Diseases and CGT Policy at Sanofi, and leads the IFPMA Industry Coordination Group on Rare Diseases. 

Since 2017, she leads an internal digital project construct collectively with the French rare diseases community to address the diagnostic delay in rare diseases named UniR. Externally, she is member of several public-private initiates such as Screen4care, Together4RD, Moonshot, the Global Commission, IRDIRC. 

With her current role at IFPMA, she is strongly involved in the advance of the UN agenda for People Living with Rare Diseases.